Amor Sickle Cell Voice (ASVC) provides sustainable community based psychosocial interventions through addressing gaps in sickle cell diagnosis, therapy, and nutrition by empowering uniformed caregivers to manage complex care needs.
In rural Ugandan communities, caring for children and people especially those living with sickle cell disease and other supplementary physical complications like disability are neglected and yet posing immense psycho-social challenges to family members with poor backgrounds, un-informed and under-trained to navigate complex sickle cell disease detection measures, care and rehabilitation needs.
in Kasese district equally children especially those in rural poor communities; hardly diagnosed with sickle cell disease face difficulties in accessing essential therapeutic assistive services and structures that would significantly improve their quality of lives and voice out their needs appropriately
Affected families struggle with financial constraints, making it difficult to afford adequate care, diagnosis, physiotherapy, mobility aids, and inclusive education. Without proper intervention, such children’s life independences are severely limited.
Amor Sickel cell voice (ASCV) provides sustainable community based psychosocial interventions and home visits to support vulnerable households in rural Uganda. The organisation addresses critical gaps in sickle cell diagnosis, therapy and nutrition while empowering uniformed caregivers to manage complex care needs.
Promote provision of necessary medical, humanitarian, nutritional and rehabilitative support to enhance sickle cell disease affected-children’s nutrition, improve daily their functionality and independence while ensuring access to equitable living standards.
Amor Sickel cell voice (ASCV) provides sustainable community based psychosocial interventions and home visits to support vulnerable households in rural Uganda. The organisation addresses critical gaps in sickle cell diagnosis, therapy and nutrition while empowering uniformed caregivers to manage complex care needs